Master Arnesh Shaw v. Union of India & Anr.

VIPIN KUMAR.... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs. Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters UNION OF INDIA & ANR...... Respondents Through: Mr. Bharathi Raju, Sr. Panel Counsel with Mr. Rohit Singh, for UOI. (M:9868895906) Mr. Tanveer Oberoi, Adv. for (AIIMS). (31) WITH + W.P.(C) 3662/2021 & CM APPLs. 11103/2021, 25590/2021, 32504/2021 PAYEL BHATTACHARYA..... Petitioner Through: Mr. Aditya Chatterjee and Mr. Ishaan Karki, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ORS...... Respondents Through: Mr. Anuj Aggarwal, ASC, GNCTD, Ms. Ayushi Bansal, Mr. Sanyam Suri and Ms. Arshya Singh, Advocates for R-2 (M:9891363718). Mr. Ripudaman Bhardwaj CGSC with Mr. Kushagra Kumar Adv. for UOI. Mr. Tanveer Oberoi, Adv. for (AIIMS). (32) WITH + W.P.(C) 3682/2021 & CM APPL.11153/2021 HARSHIT SONI, 16 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

TIKAM CHAND SONI..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. T.P. Singh, Sr. Central Govt. Counsel for R-1 (M:9971579687). Mr. Tanveer Oberoi, Adv. for Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters (AIIMS). (33) WITH + W.P.(C) 3689/2021 & CM APPL.11179/2021 DHANANJAY BHARDWAJ, 11 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH. AMIT KUMAR..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Sanjeev Uniyal and Mr. Dhawal Uniyal, Advs for R-1 (M:9560806614). Mr. Tanveer Oberoi, Adv. for (AIIMS). (34) WITH + W.P.(C) 3706/2021 & CM APPL. 11229/2021 KHUSHWANT BHARDWAJ, 7 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

NIKHIL BHARDWAJ..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Sanjib Kumar Mohanty, Sr. Panel Counsel with Mr. Subesh K. Sahood, Adv. for R-1. Mr. Tanveer Oberoi, Adv. for (AIIMS). (35) WITH + W.P. (C) 3707/2021 & CM APPL. 11230/2021 AARAV GARG, 5 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH. VIVEK..... Petitioner Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Siddharth Khatana, Advocate for UOI. (M:9811132326) Mr. Tanveer Oberoi, Adv. for (AIIMS). (36) WITH + W.P.(C) 3729/2021 & CM APPL.11269/2021 MANISH, 8 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

PHOOL CHAND JAT & ANR.... Petitioners Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Tanveer Oberoi, Adv. for (AIIMS). (37) WITH + W.P.(C) 3737/2021 & CM APPL. 11277/2021 SHOURYA MARU, 7 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

KAMAL KUMAR MARU..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Ranvir Singh (CGSC) for R-1. (M:9818071061) Mr. Tanveer Oberoi, Adv. for (AIIMS). Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters (38) WITH + W.P.(C) 3859/2021 & CM APPL. 11647/2021 SIDDHARTH SWARNKAR, 9 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

DINESH KUMAR SWARNKAR..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Anuj Aggarwal, ASC, GNCTD with Ms. Ayushi Bansal, Mr. Sanyam Suri and Ms. Arshya Singh Advocates for R-1 to 5 (M:9891363718). Mr. Tanveer Oberoi, Adv. for (AIIMS). (39) WITH + W.P.(C) 4045/2021 & CM APPL. 12213/2021 UTKARSH INDRAJIT PAWAR, 10 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

INDRAJIT DAMAR PAWAR..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Sanjeev Sabharwal, Sr. Panel Counsel with Ms. Shweta, Advocate for UOI. Mr. Harish Kumar Garg and Ms. Khushboo Sharma, Advocates for UOI (M:9810150029). Mr. Tanveer Oberoi, Adv. for (AIIMS). (40) WITH + W.P.(C) 4067/2021 & CM APPL. 12306/2021 Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters ANSHU, 10 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

NARENDRA KUMAR YADAV …... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Tanveer Oberoi, Adv. for (AIIMS). (41) WITH + W.P.(C) 4259/2021 & CM APPL. 12948/2021 ISHAAN, 10 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

RAJVIR SINGH..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondent Through: Mr. Tanveer Oberoi, Adv. for (AIIMS). Mr. Ripudam Bhardwaj, CGSC with Mr. Vinod Tiwari, Adv. for R-1 & 3. (42) WITH + W.P.(C) 4304/2021 & CM APPL. 13108/2021 TANAV HANDOO, 6 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH. AMIT HANDOO..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Satya Ranjan, (Sr. Panal Counsel) with Mr. Kautilya Birat, Advs for Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters UOI. Mr. Tanveer Oberoi, Adv. for (AIIMS). (43) WITH + W.P.(C) 4551/2021 & CM APPL. 13949/2021 SHAURYA DAHIYA, 7 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

SATBIR DAHIYA..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Avnish Singh, (SCGC) and Ms. Pushpalata Singh, Advocate. (M:8826437138) Mr. Tanveer Oberoi, Adv. for (AIIMS). (44) WITH + W.P.(C) 4812/2021 & CM APPL. 14844/2021 NIKHIL YOGENDERSINGH CHOUDARY, 17 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

YOGENDERSINGH P CHOUDARY..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Ranvir Singh (CGSC) for R-1. Mr. Tanveer Oberoi, Adv. for (AIIMS). (45) WITH + W.P.(C) 5394/2021 & CM APPL. 16683/2021 UDAYVEER SINGH GULERIA, 7 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

RAMESH GULERIA..... Petitioner Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Tanveer Oberoi, Adv. for (AIIMS). (46) WITH + W.P.(C) 5395/2021 & CM APPL. 16686/2021 MASTER AYUSHMAN CHATURVEDI..... Petitioner Through: Mr. Anurag Ojha and Mr. Deepak Somani, Advocate. Mr. Deepak Somani, Advocate. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ORS...... Respondents Through: Mr. Niraj Kumar, Sr. Central Govt. Counsel for UOI. Ms. Varsha Sharma on behalf of Mr. Jawahar Raja, ASC, GNCTD Mr. Tanveer Oberoi, Adv. for (AIIMS). (47) WITH + W.P.(C) 9684/2021 AADHYAN JAISWAL 11 YEARS OLD THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH ANIL KUMAR JAISWAL..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ORS...... Respondents Through: Mr. Divyam Nandrajog, Panel Counsel, GNCTD with Mr. Mayank Kamra, Adv. Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters Mr. Tanveer Oberoi, Adv. for (AIIMS). (48) WITH + W.P.(C) 14317/2021 & CM APPLs. 45148/2021, 14521/2023 SHREYANSH AARAV, 11 YEARS OLD, THROUGH HIS NEXT FRIEND AND NATURAL MOTHER SMT.

KANCHAN KAMINI..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Ripudaman Bhardwaj CGSC with Mr. Kushagra Kumar Adv. for UOI. Mr. Tanveer Oberoi, Adv. for (AIIMS). (49) WITH + W.P.(C) 1182/2022 & CM APPL. 3442/2022 INSHA MINOR THROUGH HER NEXT FRIEND AND NATURAL FATHER SH IRSHAD AHMAD SOFI..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ORS...... Respondents Through: Mr. Sanjeev Uniyal & Mr. Dhawal Uniyal, Advs for R-1. (M:9560806614) Mr. Rishikesh Kumar ASC-GNCTD, with Mr Aditya Raj, Mr. Muhammad Zaid, Mr. Sheenu Priya, Mr. Sudhir Kumar Shukla & Mr Sumit Choudhary, (Advocates) Mr. Tanveer Oberoi, Adv. for (AIIMS). (50) WITH Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters + W.P.(C) 1054/2023 and CM APPL. 4164/2023 MASTER TUSHAR THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH. JAI PRAKASH..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Advocate for UOI. Mr. Ripudaman Bhardwaj CGSC with Mr Hardik Bedi GP for UOI. Mr. Tanveer Oberoi, Adv. for (AIIMS) (51) WITH + W.P.(C) 1079/2023 and CM APPL. 4248/2023 MASTER RUDRA PAWAR THROUGH HIS NEXT FRIEND AND NATURAL MOTHER SMT. ANU VISHNOI..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Advocate for UOI. Dr. Nabendu Sekhar Chatterjee, from ICMR. Mr. Ripudaman Bhardwaj CGSC with Mr Hardik Bedi GP for UOI. Mr. Tanveer Oberoi, Adv. (53) AND + W.P.(C) 2614/2023 KARAN, 14 YEARS OLD THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

VIJAY KUMAR..... Petitioner Through: Ms. Sonia Sharma, Ms. Neha Chugh, Mr. Vijay Chandra jha & Mr. Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters Tushant, Advs. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Nitinjya Chaudhry, Sr Panel Counsel with Mr. Abhishek, GP (M- 9810103680). Mr. Abhishek Khanna, Adv. for R-1. Mr. Tanveer Oberoi, Adv. for (AIIMS) (54) WITH + W.P.(C) 4495/2023 & CM APPL.17190/2023 PARAS JAIN THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

SANDEEP JAIN..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. (M: 9811101923) Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Raj Kumar, Advocate, SPC, UOI. Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. (55) WITH + W.P.(C) 4502/2023 & CM APPL.17238/2023 SHREYANSH VERMA THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

DHEERAJ KANT VERMA..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Raj Kumar Yadav, Advocate for UOI. (M:9818836222) Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. (56) WITH + W.P.(C) 4526/2023 & CM APPL.17321/2023 MASTER LAKSHYAVED KALISHARAN THROUGH HIS NEXT FRIEND AND NATURAL MOTHER SHILPA RAMESH …. Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. Mr. Virender Pratap Singh Charak and Ms.Shubhra Parashar Advocates for UOI. (57) WITH + W.P.(C) 4535/2023 & CM APPL.17331/2023 MASTER CHINMAY BARUPAL THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

ASHOK KUMAR BARUPAL..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. Ms Monika Arora ( CGSC), Mr Yash Tyagi, Adv & Mr Subhrodeep, Adv. (58) WITH + W.P.(C) 4536/2023 & CM APPL.17333/2023 MADHAV SHARMA THROUGH HIS NEXT FRIEND AND Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters NATURAL FATHER SH.

NEERAJ SHARMA..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Sushil Raaja, SPC, UOI. Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. (59) WITH + W.P.(C) 4538/2023 & CM APPL.17337/2023 SANDEEP KALIA..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. Mr. Mukul Singh CGSC, Ms. Ira Singh, Adv. for R-1. (M:

9971359513) (60) WITH + W.P.(C) 4539/2023 & CM APPL.17340/2023 RAJVEER SRIVASTAVA THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

RAJESH KUMAR RIVASTAVA..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ORS...... Respondents Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters Through: Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. Mr. Mukul Singh CGSC, Ms. Ira Singh, Advocate for R-1. (61) WITH + W.P.(C) 4591/2023 & CM APPL. 17548/2023 VANSH THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

VIPIN KUMAR..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ORS...... Respondents Through: Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. Ms Monika Arora ( CGSC), Mr Yash Tyagi, Adv & Mr Subhrodeep, Adv. Mr. Mukul Singh CGSC, Ms. Ira Singh, Advocate for R-1. (62) AND + W.P.(C) 5102/2023 & CM APPL.19968/2023 PRANSHU NAMDAR THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

PARIXIT NAMDHAR..... Petitioner Through: Mr. Ashok Agarwal, Mr. Kumar Utkarsh, and Mr. Manoj Kumar, Advocates. Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advs.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Ms. Ritu Reniwal (SPC UOI). Ms Prerna Dhall & Mr Ripu Dhiman, Advocates (M- 8920466138) (63) WITH + W.P.(C) 5726/2023 & CM APPL. 22436/2023 MASTER HARENDER THROUGH HIS NEXT FRIEND AND Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters NATURAL FATHER SH.

SUNDER SINGH & ANR...... Petitioners Through: Mr. Ashok Agarwal, Mr.Kumar Utkarsh & Mr. Manoj Kumar, Advs. (M: 9811101923)

VERSUS

UNION OF INDIA & ORS...... Respondents Through: Mr Neeraj, Mr Sahaj Garg & Mr Vedansh Anand, Advocates for UOI. Mr. Tanveer Oberoi, Advocate for (AIIMS). Mr. Sudarshan Rajan, Mr. Hitain Bajaj and Mr. Mahesh Kumar, Advocates for R-4. (64) WITH + W.P.(C) 5753/2023 & CM APPL. 22528/2023 VINAY THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

VERSUS

8010414123) (65) WITH + W.P.(C) 6089/2023 & CM APPL. 23902/2023 MASTER SAIANSH THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

VERSUS

UNION OF INDIA & ORS...... Respondents Through: Mr Kirtimaan Singh CGSC, Ms Vidhi Jain, Mr Hardik Bedi GP, for R-1. Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters Mr Atul Krishna Senior Panel Counsel, Mr Hardik Bedi GP. (M:

8010414123) Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. (93) WITH + W.P.(C) 7549/2023 and CM APPL. 29273/2023 MASTER CHUNNU YADAV THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Ripudaman Bhardwaj, CGSC with Mr. Kushagra Kumar, and Mr. Abhinav Bhardwaj, Advs. for UOI. Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Adv. for UOI. Mr. Gokul Sharma (GP) for R-1. (M- 9045885304) Mr. Tanveer Oberoi (M:9958935556) and Mr. Jaswinder Singh, Advocate (M:9811232066) Ms Prerna Dhall & Mr Ripu Dhiman, Advocates (M- 8920466138) (94) WITH + W.P.(C) 7553/2023 and CM APPL. 29299/2023 MASTER HARSHIT PAWAR THROUGH HIS NEXT FRIEND AND NATURAL FATHER SH.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Ripudaman Bhardwaj, CGSC with Mr. Kushagra Kumar, and Mr. Abhinav Bhardwaj, Advs. for UOI.s Mr. Tanveer Oberoi (M:9958935556) and Mr. Jaswinder Singh, Advocate (M:9811232066) Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters (104) AND + W.P.(C) 7644/2023 and CM APPLS. 29628-29/2023 MASTER SATYAKI ADAK THROUGH HIS NATURAL GUARDIAN..... Petitioner Through: Mr. Rahul Malhotra, Advocate.

VERSUS

UNION OF INDIA & ANR...... Respondents Through: Mr. Ripudaman Bhardwaj, CGSC with Mr. Kushagra Kumar, and Mr. Abhinav Bhardwaj, Advs. for UOI.s Mr. Tanveer Oberoi (M:9958935556) and Mr. Jaswinder Singh, Advocate CORAM: JUSTICE PRATHIBA M. SINGH Prathiba M. Singh J. (Oral)

1. This hearing has been done through hybrid mode.

2. On the last date of hearing, the Court was informed that the second tranche of payment as per the Grant-in-aid Letter Agreement (GLA) has been arranged by Hanugen. In view of said submission, the Court had directed a meeting to be held between Hanugen, BIRAC, and the representatives of ICMR to decide the time table for the clinical trials for therapies for rare diseases in terms of the approved protocols.

3. Furthermore, in order to ensure that there is optimal coordination between the medical community, the providers of therapies and the governmental agencies, and to ensure that the Rare Diseases Policy, 2021 is implemented in an efficient manner, the Court had constituted the National Rare Diseases Committee (hereinafter “Committee”). The first meeting of the Committee was also fixed by the Court.

4. Ms. Vidhi Jain, ld. Counsel appearing on behalf of Union of India submits that meetings in view of the order passed by the Court were held Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters and has placed on record the minutes of the following two meetings: ● Meeting between ICMR, BIRAC and Hanugen Therapeutics ● Meeting between National Rare Diseases’ Committee

5. As per the minutes of the meeting dated 23rd May, 2023 involving ICMR, BIRAC and Hanugen, ICMR has, in principle, agreed to fund four clinical trial sites for the stages to be conducted by Hanugen. The said funding would include support for data monitoring, data management, quality assurance and regulatory support for Hanugen. The tentative timelines for the same, as stated in the minutes, are as under:

1. ICMR will complete review of the project through Project Review Committee and hold a meeting with site PIs by 30th June, 2023.

2. Hanugen will manufacture adequate amount of investigational drug manufactured in GMP approved site by 3rd week of July, 2023.

3. ICMR will release 1st year funds to the trial sites by 30th September, 2023.

6. A perusal of the minutes of meeting dated 25th May, 2023 of the National Rare Disease Committee, would show that the Committee has extensively discussed the manner in which rare diseases should be dealt with in India. The Committee has framed short-term goals, mid-term goals and long-term goals as also action points. For the present purposes, action points identified by the Committee are relevant and the same are set out below: “(i) Dr. Madhulika Kabra was entrusted to collate list (similar to AIIMS, Delhi) of all patients of rare diseases treated under CoE. She was also asked to provide a comprehensive List of diseases, effective drugs, Drug cost, manufacture by 5th June, 2023.

(ii) M/s. Sarepta may be called for discussions

Signing Date:29.05.2023 22:41 2023:DHC:3833 W.P.(C) 5315/2020 & connected matters before the Committee to chalk out ways as to how the drugs can be made available in the country.”

7. The next meeting of the Committee is scheduled to be held on 13th June, 2023 at 10:00 am.

8. In addition to the above, Ms. Jain, ld. Counsel submits that the Government has also contacted M/s Sarepta on 27th May, 2023. The Under Secretary to the Rare Disease Cell has written an email to the Senior Vice President of M/s. Sarepta stating that the Committee would like to have a meeting with Sarepta. She further submits, under instructions, that a reply dated 29th May, 2023 has been received to this email to the effect that Sarepta has agreed to have a virtual meeting with the Committee on 13th June, 2023.

9. Paragraph 22 of the order dated 15th May, 2023 highlights the urgency required in treatment in respect of those patients whose treatment has been stopped due to lack of funding. The said paragraph shall be brought to the attention to the members of the Committee on the next date of meeting. For the purpose of ready reference, paragraph 22 of the order dated 15th May, 2023 is reproduced hereinunder:

10. Considering the urgency involved in the matter for patients who have already been provided treatment by AIIMS after procuring medicines from Sarepta, the Committee may discuss the best possible measures during its discussion with Sarepta in relation to the manner in which the treatment can be resumed for all these patients.

11. Accordingly, the Committee shall hold deliberations with M/s Sarepta for urgent procurement of the medicines and also the timelines by which the supplies can be made for the same.

12. Ld. Counsel for the Petitioner in W.P.(C) 2943/2020, i.e., Ms. Alishba Khan submits that she suffers from Gaucher disease, and treatment to the extent of Rs.50 lacs has already been provided to her.

13. The Committee shall also consider her case for continuation of further treatment and for the said purpose may also contact, Sanofi India if it deems necessary.

14. Issue notice in W.P.(C)s 7549/2023, 7553/2023 & 7644/2023. These are the petitions filed by children who are suffering from DMD. Let the said petitioners be examined under the supervision of Dr. Kabra and a report be placed on record as to the feasibility of providing them any treatment.

15. List for receiving of further reports on 10th July, 2023 at 3:30 pm.

PRATHIBA M. SINGH JUDGE MAY 29, 2023/dk/sk